Inflammatory breast cancer is the most aggressive of all these cancers in which a tumor of any size has spread to the breast skin, chest wall, or internal mammary lymph nodes (located beneath the breast right under the ribs, inside the middle of the chest). This is a very uncommon but very serious, aggressive type of cancer.
The most distinguishing feature of this cancer is redness involving part or all of the breast. The redness feels warm. You may see puffiness of the breast's skin that looks like the peel of a navel orange ("peau d'orange"), or even ridges, welts, or hives caused by a buildup of fluid and edema (swelling) in the breast.. And part or all of the breast may be enlarged and hard. A lump is present only half of the time. This cancer is sometimes misdiagnosed as a simple infection.
Inflammatory breast cancer, although rare, is called "inflammatory" because the breast often looks swollen and red, or "inflamed." This cancer accounts for 1 to 5 percent of all cancer cases in the United States. It tends to be diagnosed in younger women compared to non-inflammatory breast cancer. It occurs more frequently and at a younger age in African Americans than in Whites.
Like other types of cancer, inflammatory breast cancer can also occur in men, but usually at an older age than in women. Other symptoms include heaviness, burning, aching, increase in breast size, tenderness, or a nipple that is inverted (facing inward). These symptoms usually develop quickly-over a period of weeks or months. However, it is important to note that these symptoms may also be signs of other conditions such as infection, injury, or other types of cancer.
Diagnosis of inflammatory breast cancer is based primarily on the results of a doctor's clinical examination . Biopsy, mammogram, and breast ultrasound are used to confirm the diagnosis. This cancer is classified as either stage IIIB or stage IV . Stage IIIB cancers are locally advanced; stage IV cancer is cancer that has spread to other organs. Inflammatory breast cancer tends to grow rapidly, and the physical appearance of the breast of patients with this cancer is different from that of patients with other stage III cancers.
Prognosis describes the likely course and outcome of a disease - that is, the chance that a patient will recover or have a recurrence. Inflammatory breast cancer is more likely to have metastasized (spread to other areas of the body) at the time of diagnosis than non-inflammatory cancer cases.
As a result, the 5-year survival rate for patients with this cancer is between 25 and 50 percent, which is significantly lower than the survival rate for patients with non-inflammatory. It is important to keep in mind, however, that these statistics are averages based on large numbers of patients. Statistics cannot be used to predict what will happen to a particular patient because each person's situation is unique.

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Inflammatory breast cancer, known only by some doctors and men and women who have been diagnosed with this rare form of cancer, are aware of its existence.

As any woman who is knowledgeable about how to check for breast cancer will tell you, they check regularly for lumps. That is what we have been told to do. That, and getting annual mammogram scans.

But IBC is amongst us, and has been for quite awhile. It is a rare type of breast cancer, and the need for knowledge on this issue should be highly publicized. Because by the time a woman, and in some cases men know, when the symptoms rear their ugly head, it is usually in a very advanced stage.

How do I know? I learned the hard way.

My 37 year old healthy athletic daughter has just been diagnosed. In just a few months she went from knowing she was very healthy, to the reality that IBC had invaded her body. My daughter has besieged me to write about this form of cancer. To get the word out to women and men about this untalked about cancer, IBC. Did she have symptoms? Not the type we are all told to watch for. She has related the below to explain what happened in her case.

"I had been working out for about 8 months, with a trainer. All the other women in my workout class were getting fit and trim, but I just got heavier and seemed to build muscle in my arms, legs and breast. In April of 2003 I decided to quit the weights and the workouts and try to shed some of the pounds, which I did quite quickly. I lost 25 to 30 pounds rapidly.

That's when I noticed that the nipple on my right breast seemed slightly inverted and it was bigger than my left. Being right handed, I thought it was from all the weight lifting and shedding of pounds that caused this oddity.

In May I noticed that the right breast was a little harder than the left, but no lump, no pain, nothing to signal what I had been told all my life to watch out for. It was a gradual thing, this lopsided look that I was seeing in the mirror.

I began the search for a Doctor in the small town I had moved to just the year before. By the time I found one that would take my insurance, it was September and the first day of my vacation. I saw a nurse practitioner who took one look at my enlarged right side and immediately called for a mammogram and ultrasound that same day. I will never forget the woman that took the scans. She flippantly said, Oh, she's done.

The very next day I saw a surgeon who did a deep core biopsy, a needle biopsy and a skin biopsy. Before he even got the results back he told me he believed it was cancer. He walked out of the room and started making phone calls, then came back and said I was to see an Oncologist the next morning.

The Oncologist had seen the biopsy already, and told me I had Inflammatory Breast Cancer. After years in nursing school and also pharmacy training, I had never heard of IBC. I learned that day how invasive this rare form of cancer is, that I was 'classed at stage 4.

I was immediately scheduled the next day for surgery to implant a portable catheter in my left chest wall and told I was going in for a PET scan the next week to see if the cancer had spread to any other parts of my body. The scan came back positive for right arm lymph nodes and my liver. The Chemotherapy that had been scheduled was changed to now attack the liver also. On October 3rd I started the first round of massive doses of cancer fighting drugs, six grueling hours of IV bags dripping into the portable catheter, Herceptin, Taxol, and Carboplatin."

My daughter was told by the many clinical savvy medical personnel, "Why in the world did you wait so long?" The why is the reason for this writing. The why is because we are not told about the symptoms of this fast moving form of cancer. Only if you go looking for information about IBC do you find the articles, the symptoms and the support groups from the many women world wide that found out about IBC the hard way. And there are still many Doctors that will treat a patient like my daughter with antibiotics before ever realizing what they have right in front of them.

The word INFLAMMATORY in itself suggests just an infection for the lay person.You ask yourself, if this was me, would I know that I could have breast cancer. Before that day in September when my daughter called me, I would have said no, maybe I have an infection in a milk duct or some other thing. With no lump as we are told to look for, your mind doesn't really kick in if you're unaware of IBC.

BE AWARE! Not just in October when it's Breast Cancer Awareness Month, but all the time. Ask your Doctor, put it in a search engine, read about it. Know what the signs are.

From the articles and research papers which I have read till my eyes burn, I have found people with this rare disease offer assistance and emotional support. They also have urged that the public awareness of this disease needs to be put on the front page, not at the bottom of a list.

There are many statistics of the prevalence of breast cancer, how to watch for it, how to check for it and what the gruesome regimen of chemotherapy, removal of the breast, then radiation are clinically required. Inflammatory Breast Cancer actually has been around for many years, but because of it's rareness, it isn't talked about that much. BUT IT SHOULD BE.

Age of women who get it vary, but from this writers research it seems that this occurs to women and some men in their early productive years. Treated just as the name implies An Inflammation, many doctors are in the dark when the mammogram comes back clear, and even in some incidences, a biopsy can come back normal. The patient on the other hand knows something isn't right, and in many cases only relies on her Doctor for guidance. But there it lurks in the system, triggered by an unknown cause. Researchers say it isn't hereditary.

There was one case in Castro Valley California, where 3 women were diagnosed with IBC and they all worked in the same place. The Doctor who treated these women has cried out for funding to find the cause in this particularly incident, because they all worked in a lab and were all close to the same age. But, because IBC is so rare, funding did not come quick enough.